New APPG on ME for the UK – Meeting
Following the success of the last parliamentary debates on myalgic encephalomyelitis (ME), Carol Monaghan MP is reviving the All-Party Parliamentary Group (APPG) on ME. After well attended Westminster...
View ArticleNext Steps for the APPG on ME in the UK
#MEAction and the ME Association are both delighted that Carol Monaghan (MP for Glasgow North-West) has re-established a new All-Party Parliamentary Group (APPG) on ME. This is a parliamentary...
View ArticleAPPG on ME: Biomedical Research Meeting
The All-Party Parliamentary Group (APPG) on ME held its first meeting on March 3, where biomedical research was discussed. Twenty MPs attended or sent staff to hear about the urgent need for...
View ArticleAPPG on ME – Next meeting scheduled
The All-Party Parliamentary Group (APPG) on ME will be resuming work on their report at a virtual meeting on Tuesday 16th June. This meeting will cover issues relating to children and adolescents with...
View ArticleTake action: graded exercise harming people with ME and COVID long haulers
#MEAction UK has sent an open letter to Matt Hancock asking him to recognise the harm caused by graded exercise therapy. We are calling on him to ensure all advice for people with ME, and those at risk...
View ArticleUK government should add ME to vaccine priority list
After receiving increasing reports that people with ME are being told they will not be prioritised for the COVID-19 vaccine, #MEAction has written to the Chief Medical Officer Professor Whitty, and...
View ArticleAPPGs should collaborate on ME and Long Covid
#MEAction UK has written to the chairs of the Coronavirus All Party Parliamentary Group (APPG) and the Myalgic Encephalomyelitis APPG requesting they collaborate. We have highlighted 3 specific areas...
View ArticleContinuing pressure on NHS to vaccinate people with ME in light of survey...
Photo credit: Andrew Parsons No10 Downing St As reported last week, the preliminary findings from the joint survey between #MEAction and Action for M.E demonstrated that most respondents with ME...
View ArticleUK Parliamentary Group to discuss new ME/CFS guideline
The next meeting of the All-Party Parliamentary Group on Myalgic Encephalomyelitis (APPG on ME) will take place from 2 – 3 pm on 24 November 2021. Email your MP asking them to attend, and help to...
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DHSC released a new progress Report
DHSC has released an update on the progress of the work underway to support the development of a Delivery Plan on Myalgic Encephalomyelitis / Chronic Fatigue. This is dated from December 2022.You can...
View ArticleQuestions to Ask Prospective MPs About ME/CFS
In the next few weeks, candidates will be knocking on doors seeking votes for the upcoming UK Election. It’s important that candidates from all parties are made aware of the challenges facing people...
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